SWEET for rare forms of diabetes
Over the last years ISPAD has supported the integration of diabetes clinic data in the SWEET database. This is becoming progressively a worldwide clinical registry. Such a registry will not only allow comparisons - benchmarking - between centers, but it can also contribute to combine forces in tackling diagnostic challenges, and in improving care for the rare forms of diabetes.
To move this aspect forward, some European SWEET centers have applied for the subgroup ‘Genetic disorders of Glucose and Insulin Homeostasis’ lead by Thomas Danne within the Rare Endocrine Diseases European Reference Network (Endo ERN). The objectives of an ERN are to share expertise, improve diagnosis, educate and train patients, care providers and doctors, produce guidelines, build databases, develop connections to facilitate research and perform clinical trials on rare endocrine conditions.